I Just Interviewed Elite London’s Model Scout for My New Magazine


I keep getting the opportunity to do things I’d never imagine doing, making friends with people in industries I’d never thought I’d even care about!  But I’m constantly proven wrong and my world opens that much more with each friend I make.

I just interviewed ELITE LONDON​’s (a top international modeling agency) model scout Ryan Young.  Who’d thunk I’d know what a model scout even was?  We talked about behind the scene life with models, advice for modeling success, teen male sensation Lucky Blue Smith​’s fans, & Ryan’s viral Polaroid candid of Kim Kardashian​ & North West.

My adventures, much of it done while sick at my desk or in bed, never ceases to amaze me.    The internet isn’t just my wheelchair but has given me access to the whole globe.  Can’t wait to see what’s next!

Read the full interview: http://mithmagazine.com/interview-ryan-young-elite-london-model-scout/

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    Skipping 3rd Dose (3rd Week) of Methotrexate. Completely Debilitated After 2 Weeks.

    Sent this to my doctors tonight.  Decided to skip my weekly dose of Methotrexate after 2 weeks on this stuff.  However, my local doctor who’s been administering my treatments responded with an “Out of Office Until 7/16″ message. Hope my doctors in Utah respond with better ideas.



    Skipping tonight (sunday) 3rd weekly dose of Methotrexate. If you think I should continue or reduce cyclosporine, let me know.

    Have been feeling worse and worse for the past 2 weeks on Methotrexate. Started with head feeling “cloudy”, then head/brain area felt “heavy,” but not nauseous or pounding headaches. Just pressure, or maybe lack of pressure. During 2nd week, heart starting to feel awkward, weaker. Blood pressure is around 118/78 the 2nd week, which is lower than it’s been when I’ve been on only cyclosporine (BP had always been elevated with cyclosporine). Starting Tues/Wed of 2nd week, body feels extremely heavy such that having a pillow under my head still feels like my head is too high. Body feeling more sluggish and harder to control, so I’m walking hunched over at 70 or 80 degrees and can’t drive.  Though not quite as severe as when we tried Cellcept, it’s getting there.

    Please advise.”


    Also recorded a video tonight documenting this:

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      Help My Fashion Film “Tethys” Win at the Los Angeles CineFest Film Festival!

      Need everyone’s help! My 1st ever fashion film is up for 2 awards at the Los Angeles CineFest Film Festival!  As you all know, I don’t have many “good” days where I’m vertical and up and about.  However, I always push my own health limits and sometimes, miracles happens (with the help of an amazing cast and crew, who also happens to be some of my best friends).  This film “Tethys” is evidence of miracles, and that things don’t have to be perfect and you don’t have to feel perfect to make some magic!

      We’d love to win the “Audience Favorite” award WITH YOUR VOTE! If you have multiple emails, vote with each!

      Just copy & paste our title into this voting link:

      “EP.1: Tethys” Fashion Film




      By the way, “Tethys” was also accepted on IMDB!

      Tethys-GodsAmongUs-Poster_02-kalyn Tethys-GodsAmongUs-still01

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        Weight of Time

        In an age where all we seem to battle are inconveniences, training by Master Time quickly fades, along with all the gems of human existence hidden in time. A friend shared the following with me, said it reminded her of me. Grateful for thoughtful friends.

        “I saw this on my timeline and it reminded me of you. I know you have to be aware every day to take care of yourself, but you also put the glass down to accomplish so much:

        A psychologist walked around a room while teaching stress management to an audience. As she raised a glass of water, everyone expected they’d be asked the “half empty or half full” question. Instead, with a smile on her face, she inquired: “How heavy is this glass of water?”

        Answers called out ranged from 8 oz. to 20 oz.

        She replied, “The absolute weight doesn’t matter. It depends on how long I hold it. If I hold it for a minute, it’s not a problem. If I hold it for an hour, I’ll have an ache in my arm. If I hold it for a day, my arm will feel numb and paralyzed. In each case, the weight of the glass doesn’t change, but the longer I hold it, the heavier it becomes.”

        She continued, “The stresses and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them a bit longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed – incapable of doing anything.”
        Remember to put the glass down.
        (Courtesy of Jimmy Harmon)”

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          How Society Crumbles. The Modern Version. Now Playing.

          I keep getting this ominous feeling that the fragile, butthurt psyche of this generation will swiftly bring about the self-destruction of Western civilization. We have all the knowledge from the whole of human existence yet wisdom is nearly extinct. Two of the key ingredients of wisdom are time (patience) and struggles, or at the very least, inconveniences, neither of which we can tolerate nowadays. Y’all know I’m not a pessimist. I’m a realistic optimist. If the car’s going over cliff, the pessimist gives up hope and goes over, the optimist holds up hope for a flying car and also goes over, the realist jumps.

          I believe the increase in social unrest, unhappiness, and even suicides are symptoms pointing to this problem.  But again, people are too fragile and butthurt, like 3 year old children, that they are unwilling to put themselves through the necessary changes to experience true happiness.

          Just calling it as I see it. There’s lots we need to be proactively doing instead of just going along over the edge. There’s no sideline. We’re all in this together.

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            Do You Get Upset/Angry at Doctors When Medications, Shots, or Treatments Make You Worse?

            Do you feel like the [treatment/medications/shots] you got triggered worse conditions? Are you upset at doctors for recommending that?

            Got this message from a fellow allergy sufferer.  They were referring to when I tried Xolair + Cellcept and was debilitated.

            I get this question A LOT, both from friends as well as others who are sick.  When I was a child, I used to get upset, but it was mostly frustration and disappointment, not anger.

            Now as an adult, I don’t get upset at doctors.  Doctors don’t know everything.  Your doctor probably never had the same disease you have! (or else they’d be too sick to be a doctor to help you!).  Each person is different.

            I see Doctors as advisors as part of MY team.  The final decision to try a treatment is up to ME,  which means I need to learn as much about it as possible as well to make the final decision.  It is MY body, I know it best.  It is MY life, so it is MY responsibility.  Directing anger or blame at doctors or anyone else doesn’t help a bit other than to serve your own ego. BUT, if you have the energy to be angry or upset, you’re not sick enough.  When I’m sick, all I can think of is to get better.  There’s no energy to spend on anything else, and I don’t want to think about my sickness any more than I have to, but that is exactly what you’d be doing if you’re blaming someone.  You’re still investing in your illness, your discomfort.

            Also, think of it this way.  Sure, you can blame or be angry at someone else.  But you should only care about the final result: YOU, ONLY YOU, suffer the consequences.  The doctor can be as sad and apologetic as they want to be, and be genuinely sorry, but that won’t help you actually FEEL better!  So it is up to YOU to make the decisions and learn from the successes and failures.  I only look at the REAL WORLD result, and that is if I something doesn’t work, blaming someone else won’t miraculously heal me or undo the misstep.

            Plus, to get well, you have to take risks…sometimes it works and sometimes it doesn’t.  You won’t know what works or what doesn’t until you’ve tried it.  Doctors can say 99% of the time a treatment will work, but you could always be that 1% that for which it doesn’t work.  That’s usually me: the 1% or the 0.000001% exception, so I always expect something to go wrong or not work perfectly.  Doesn’t mean they’re wrong.  Or, like some other medications I’ve tried, sometimes it didn’t work at first because I was too sick, so I used other medications to solve part of the problem, then came back to the medication that didn’t work before, and now it works.

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              Featured Guest on The Kickass Guide to Life Radio Show – 3.30.15

              Will be the featured guest on The KICKASS Guide to Life Radio Show this MONDAY, MARCH 30th. 6PM. Tune in everyone!

              I met Chris through The Brightest Star, Inc. as a fellow speaker for foster kids and mental health advocates. The positivity he injects into people’s lives is priceless.https://www.facebook.com/TheKickassGuideToLife?fref=ts


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                True Wealth and Privilege: Kindness, smiles, caring, and not wasting away

                TODAY I LEARNED
                what true wealth and privilege is: something every human being has an unlimited supply of to give freely, that is invaluable to anyone who receives it.

                At my only “safe” buffet that I frequent, ran into a server our family has become close with over the years. This girl is the most positive, high spirited, welcoming, hardworking server we’ve ever seen. She’s just one of those people that make everyone around her feel better. Every restaurant would thrive if their servers ha half her work ethic and people skills. Yet when I asked her how she was doing with school and how her family was doing, for a moment the corner of her eyes swelled a bit as she told me the burdens of student loans and never able to pay for enough classes because she needed to help out at home. Even though she felt further and further behind in life, I encouraged her to just do things at her own pace and that she had all the ingredients of success…just waiting on the opportunity. As other tables called…she resumed her peppy self in an instant, but that’s not all I see anymore.

                Moral of the story? Lots!

                Moral #1: BE A FRIEND. Ask for someone’s name…and actually try to remember them as a person. If you forget it next time, ask again…instead if being offended they’ll more likely appreciate the “human” interaction instead of being used as a tool for whatever benefit you can get from them.

                Moral #2: Everyone is going through something. Just because they put on a smile (or standoffish attitude) doesn’t mean they don’t need a kind smile, an assuring look, or a simple “how was your day?”, and actually putting aside our egos for a second to really listen. These cost us nothing. We have an unlimited supply of these things. Every human being, regardless of social status or wealth, are wealthy in kindness if we decide to give it. We are beyond measure in wealth in smiles, kind words, and genuine friendship. We can give these freely and they can mean the world to someone else and, on certain days, change the whole course of their lives.

                Moral #3: Be grateful. How do you be grateful? Being grateful is an action, not just a passing thought. Be grateful by not squandering the PRIVILEGE of comfort, safety, family, friends, and time. What you take for granted could be someone else’s life goal and dreams. and IF the same privileges were placed in their hands, they’ll be able to do so much more with it than you are. Don’t squander privileges.

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                  Some Antihistamines I’ve Taken Can Cause Dementia?

                  Guess what? My doctor informed me today that new studies show certain antihistamines cause dementia in patients 65 and older. BUT, I’m advised to limit my use of these antihistamines as a precaution!

                  Which antihistamines? Benedryl, Atarax, and Doxepin. The first two I used for years since birth. When I was 5, my doctor even told me the amount of Atarax I took could knock out a small horse! I’ve been using Doxepin the last 3 years. Interestingly enough, Doxepin is more commonly used as an antidepressant! I suppose if it can help the brain as an antidepressant it can mess with the brain in other ways.

                  What’s dementia? From Wikipedia: Dementia is a broad category of brain diseases that cause a long term and often gradual decrease in the ability to think and remember such that a person’s daily functioning is affected. Other common symptoms include emotional problems, problems with language, and a decrease in motivation. A person’s consciousness is not affected. For the diagnosis to be present it must be a change from a person’s usual mental functioning and a greater decline than one would expect due to aging. These diseases also have a significant effect on a person’s caregivers.

                  The most common type of dementia is Alzheimer’s disease which makes up 50% to 70% of cases. Other common types include vascular dementia (25%), Lewy body dementia (15%), and frontotemporal dementia. Less common causes include normal pressure hydrocephalus, Parkinson’s disease, syphilis, and Creutzfeldt–Jakob disease among others.

                  People always see how horrible my skin is or how weak I appear, but they can’t see countless other internal struggles that I dominate on a daily basis.



                  Harvard Medical School: Common anticholinergic drugs like Benadryl linked to increased dementia risk

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                    Just Because It’s Legal Doesn’t Make it Right

                    SAY NO TO DIRTY MONEY.

                    Turn down a project, a lucrative business. Let me rephrase. Turn down money people want to give to you. Sounds crazy right? But the sword of justice (a.k.a. The Power of NO) has to be wielded from time to time, followed by a smackdown of WHY.

                    After consulting for a web business I really believed in, whose products offered children positive, enriching activities, the client was really impressed. He was so impressed he wanted to involve me in another web business, this time the nature of the business is the filth of the internet, if you know what I mean. It was inconceivable to me that the same owners could be improving children’s lives on one side only to be ambushing the children with something else somewhere down the line!

                    I politely turned it down. They politely counter-offered, citing how profitable this venture would be for me. I turned them down again. They came back again trying to point out how I wouldn’t be directly involved and I would only need to offer my expertise behind the scenes. Someone has to make that money, so why not us, right?!

                    WRONG! Separating business from your conscience is how such filth begins and proliferates. YOU CANNOT COMPARTMENTALIZE MORALS, VALUES, SPIRITUALITY AND HUMANITY. These things have to be ACTIVELY utilized in EVERY ASPECT of our lives, otherwise we are no better than an animal or computer or rock. Compartmentalizing these things is as absurd as thinking cigarette smoke stays in the “smoking section.”

                    I cannot stand by and be ok with people embracing their own regression to caveman status, and I definitely cannot stand by and allow them, let alone support them, in pulling down others of the human race.

                    It seems today’s world is one of over-tolerance. Where everyone accepts everyone else, even if it’s things morally wrong, because they themselves want a free pass when they do something wrong. It seems if everyone accepts everyone else, there’s no wrong because we all accept it. Oh, how naive that is.

                    A strong society is built on people’s ability to self-govern. Decoded, that means people must have their own morals and values that they will stick to (however illogical it seems because of the sums of money waiting for them.)

                    I gave this client a 20 mins verbal smackdown. Haven’t heard from him since.


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